People who experience trials incurable disease that heavy really lived his life. But with palliative treatment, the patient will still have a good quality of life despite his illness could be cured.
Palliative care means to alleviate the suffering of the patient is already terminally ill and can not be cured such as cancer, patients with motor neuron disease, neurological degenerative diseases and HIV / AIDS patients. The goal for patients to undergo the days of illness by not despair.
"Patients with incurable disease that most thought had no more to be done. For that palliative care is needed," said Prof. Dr. Dr. Akmal Taher, SpU (K) in the seminar and press conference Commemorating the Day of the World Hospis and Palliative Care in Building A RSCM, Jakarta, Thursday (07/10/2010).
Palliative care is an effective method in helping patients escape from misery, either persistent pain or other complaints. These conditions will help improve the quality of life of patients and their families.
Initially, palliative care is intended only for patients with cancer (except in South Africa initially for patients with HIV / AIDS). But now that palliative care can also be used for other diseases such as chronic obstructive pulmonary (COPD), stroke, Parkinson's, heart failure, kidney failure, genetic diseases and infections such as HIV / AIDS.
Like what is palliative care?
The point of this treatment is more of support and motivation to the patient. Then any complaints that arise are handled by the administration of drugs to relieve pain.
Palliative care can explore the individual patient and family how to give special attention to the patient, mitigation and preparedness to face death.
Palliative care focused on controlling symptoms and complaints, and not to the primary disease because of primary disease is incurable. With so patients are free from the suffering caused by complaints and can undergo end of his life in comfort.
"Palliative care is done by cooperation between doctors, nurses, therapists, social-media, psychologists, clergy, volunteers and other professionals as needed. It is intended to be free from suffering for patients, so that the high quality of life and ends with a quiet," said Prof. dr R Sunaryadi Tejawinata, SpTHT (K), FAAO, DGM, PAllMed.
Furthermore, says Prof. Sunaryadi from year 1992-2010 there is a new palliative care services in 6 major capital of Jakarta, West Java, Yogyakarta, East Java, Bali and South Sulawesi.
Palliative care is available at most government hospitals such as RS Hasan Sadikin, RSCM, SSR Dharmais, Dr Soetomo, Sanglah Bali, Dr Wahidin Sudirohusodo Napier and Dr Sardjito Yogyakarta.
While Prof. Dr. IW Suardana, SpTHT (K) said the complaints are usually felt by these palliative care patients.
Complaints that arise such as pain, gastrointestinal disturbances (nausea, vomiting, diarrhea, constipation), skin disorders (itching, dryness or from lying down too long), general weakness, impaired respiration, limb weakness, urinary tract disorders and also feel confused.
Now, with palliative care patients can be persuaded to accept the situation so that more can still live her life despite its age very soon. Since most quality of life of patients with incurable diseases will continue to deteriorate or decline if expectations of patients not in accordance with the reality.
"So the task of the palliative team is modifying the expectations of patients, so that the distance between expectations and reality become closer. Can be a way to evoke the spirit of life, future orientation, faith and even about her sexuality," said Dr Siti Annisa Nuhonni, SpKFR (K) .
Dr Nuhonni said there is always hope, but should not give false hope because hope is also to be adjusted with the results of the examination. For that family is the key to the meaning of life in palliative care.
Places to perform a variety of palliative care, such as:
1. Hospital, for patients who must receive treatment with strict supervision, special measures or special equipment meemrlukan.
2. PHC, for patients undergoing outpatient treatment.
3. Halfway house or home (hospis), for patients who do not require strict supervision, action or special equipment, but can not be treated at home because they still require supervision of health personnel.
4. Home patients, for patients who do not require strict supervision, action or special equipment, and maintenance skills can be done by family members.
In addition to reducing the symptoms that arise, palliative care also provides support in terms of spiritual and psychosocial. This treatment can be started when the diagnosis was announced until the end of life of the patient.
"Although the patient had died, palliative care does not stop there. Because palliative volunteers will also provide moral support to families who are grieving," said Prof. Sunaryadi.